Had my infusion yesterday. Hard to explain, but about two hours in I started getting some meaningful relief. Kind of like after you pull a splinter out. The wound is still there and it hurts, but it's not actively getting worse.
Ive been taking so much prednisone over the past two months that I started having nosebleeds. I have felt like my spine has been literally on fire for months. I feel so much better right now. Im still really exhausted, sore and achey, but compared to yesterday, it's a whole new world.
I slept in my bed for the first time in a month. I couldn't lay down for extended periods of time because my knees would feel like they are exploding. It feels so good to not hurt as much! Its crazy how much part of daily life symptoms are. Ive now completed my first year on Ocrevus. I am a believer. Im excited to see what can happen after future infusions. One thing I know for sure is that this is NOT in my head. This year has been hell, but it's over. Thanks for letting me rant.