Family Caregiver Alliance
Family Caregiver Alliance
EIN: 94-2687079
as of November 2025
as of November 14, 2025
Mission
To improve the quality of life for caregivers and the people who receive their care. VALUES: RESPECT - caregivers, their families and to the extent possible, care receivers, should be the decision makers in planning care; OPTIONS - committed to increasing the range of choices available to families; QUALITY - committed to quality and to providing the best of what's available, through timely, prompt service, well-trained staff and up-to-date information; INNOVATION - seee new and better approaches by linking research and service; DIVERSITY - serving the diverse and changing population of caregivers; COLLABORATION - form partnerships with other organizations to further our mutual aims. EFFICIENCY - use resources to the fullest, waste nothing, be accountable for what we do.
Notes from the nonprofit
Over our 40+ year history, FCA has gained a well-earned reputation locally and nationally for its quality of work, direct caregiver services delivery, caregiver policy advocacy and practical research, and has been instrumental in moving the ball forward toward recognition and support of the family and friend caregiver.
Ruling year
1980
Executive Director
Kathleen Kelly
Main address
235 Montgomery St Ste 930
San Francisco, CA 94104-3002 USA
Formerly known as
Family Survival Project for Brain-Damaged Adults
EIN
94-2687079
Family services
Health
Population served
Caregivers
NTEE code
Family Services (P40)
IRS subsection
501(c)(3) Public Charity
IRS filing requirement
This organization is required to file an IRS Form 990 or 990-EZ.
Tax forms
Communication
Programs and results
Reports and documents
Download other documentsWhat we aim to solve
When FCA was founded over 40 years ago, there were no supports in place for those caring for a relative or friend at home. Although great inroads have been made toward recognizing the caregiving role and its demands, and some recognition that caregivers constitute the backbone of our healthcare in the U.S, there is a long way to go. Caregivers are still not fully recognized or supported adequately. They continue to be burdened with the physical, emotional and financial costs of caring, and are not yet universally recognized as integral to care strategies and practices within healthcare and other systems.
Our programs
What are the organization's current programs, how do they measure success, and who do the programs serve?
Bay Area Caregiver Resource Center
The Bay Area Caregiver Resource Center provides direct services to caregivers of the six Bay Area counties. Services include: assessment; assistance with long-term planning, community resource referrals, legal consultations, short term counseling, and respite care; ongoing telephone support and consultation; educational classes, workshops, webinars; publications; caregiver retreats and weekend camps for the care receiver. All services are free or on a sliding scale. Caregivers can call or email for information or to speak with a family consultant. Caregivers can also join FCA's CareNav online to access personalized resources.
Rosalinde Gilbert Innovations in Alzheimer's Disease Caregiving Legacy Awards
Three awards of $20,000 each will be awarded to nonprofit organizations, government agencies, or universities responding to a community need with a program or project which focuses primarily on family caregivers of adults with Alzheimer's disease and related dementias. One award will be granted in each of three categories: creative expression (programs or projects that use imaginative and creative approaches in supporting informal caregivers or persons with dementia), increasing access and reducing stigma (programs or projects that provide services, support, or other types of outreach to informal caregivers in diverse ethnic, rural, low-income, LGBT, or other communities), and policy and advocacy (programs or projects that advocate for systems change for the benefit of informal caregivers or care recipients with Alzheimer's disease or related topics)
FCA CareNav
Spouses, adult children, relatives and friends who care for adults living with cognitive impairment and other chronic health conditions get valuable information, resources, and support tailored specifically to their unique caregiving situation on Family Caregiver Alliance (FCA) CareNav. It’s free to caregivers, private, and accessible by computer or mobile device 24/7. Secure and HIPAA-compliant, CareNav enables family caregivers to get the information and training they are seeking and links them to education, tested interventions, consultation with expert staff and peer support. Built by FCA using vetted assessment measures, CareNav creates a personalized client record that tracks service usage and change over time across domains of direct care capabilities, stress, depression, health, health care utilization, and social supports. Developed with 40+ years of experience providing direct services, CareNav scales service access and provides a virtual caregiver resource center to a grow
National Center on Caregiving
The National Center on Caregiving (NCC) unites research, policy, and practice to advance the development of high-quality, cost-effective programs and policies for caregivers in every state. It is a central source of information and technical assistance on caregiving and long-term-care for policy makers, health and service providers, media, program developers, funders and families. NCC research and publications document emerging trends and caregiver needs and services throughout the country. The FCA CareNav, a first-of-its-kind, comprehensive, online guide to help families locate publicly-funded caregiver support programs in all 50 states is available at www.caregiver.org, and NCC staff also provide personalized assistance by phone and email to identify local resources and services for families.
Where we work
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Alameda County (California, United States)
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City and County of San Francisco (California, United States)
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Contra Costa County (California, United States)
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Global
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Marin County (California, United States)
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San Mateo County (California, United States)
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United States
Awards
'Influencer in Aging' for our Executive Director, Kathleen Kelly 2016
Next Avenue
Affiliations & memberships
Home Alone Alliance 2018
Eldercare Workforce Alliance 2018
Co-Founder, CA Coalition on Family Caregiving 2021
Lead Partner with Benjamin Rose Institute on Aging, Best Programs for Caregivers 2019
Member and Presenter, BOLD Public Health Center of Excellence on Dementia Caregiving 2020
Videos
Our results
How does this organization measure their results? It's a hard question but an important one.
Number of list subscribers
This metric is no longer tracked.Totals By Year
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
Totals reflect combined totals for our four e-newsletters. 2024 number reflects our fiscal year total; previous years reflect calendar year.
Number of unique website visitors
This metric is no longer tracked.Totals By Year
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
2024 website visit totals reflect our fiscal year; previous totals reflected calendar year totals. The large drop in 2021 visitor numbers from 2020 are attributable to migration to a new platform.
Number of classes for limited-English speaking caregivers.
This metric is no longer tracked.Totals By Year
Type of Metric
Output - describing our activities and reach
Direction of Success
Increasing
Context Notes
These numbers represent the number of ongoing classes for Spanish- and Chinese-language speaking caregivers, with the goal of enhancing services for diverse communities.
Our Sustainable Development Goals
Learn more about Sustainable Development Goals.
Goals & Strategy
Learn about the organization's key goals, strategies, capabilities, and progress.
Charting impact
Four powerful questions that require reflection about what really matters - results.
What is the organization aiming to accomplish?
Family Caregiver Alliance envisions a world where every family caregiver is adequately supported, with information, skills, tools (including caregiver respite) – and is not impoverished by the experience. Moreover, we seek a future where every system is equipped to care for caregivers and positions them as integral to family-centered care strategies and practices.
To this end, we work to improve the quality of life for family caregivers - the backbone of our nation's long-term care system—through actionable education, direct services, results-driven advocacy and quality research. The shared common challenges of those who care—adult children, spouses, partners, other relatives and friends—are: isolation, lack of information, major upheaval in family and work life, financial strain, marginal recognition of their important role by doctors and healthcare institutions, and more. These obstacles conspire to put the health and well-being of the caregiver at risk.
Our commitment is to empower and sustain the critical work of the family caregivers who provide long-term care at home for adult loved ones (onset of disability 18yrs and older) living with chronic, life impairing health conditions. We employ core values of respect, options, quality, innovation, diversity, collaboration and efficiency towards this aim https://www.caregiver.org/about-fca.
What are the organization's key strategies for making this happen?
Key strategies of the Family Caregiver Alliance Board Directors and senior management are to be a trusted source of knowledge about family caregivers and to be a catalyst to ensure that caregivers are fully recognized and supported. Our tactics are to provide direct services to caregivers and those who receive their care, and also to advocate statewide and nationally for strong caregiver recognition and support – functionally and financially. We research best practices, collect data to analyze, and utilize findings to provide value in all that we do, while also working to share our findings to stakeholders—family caregivers, funders, policy makers, health systems, the media and others. For more information, see "Evaluation of Service Delivery and System Change" by the California Resource Centers, conducted by the UC Davis School of Nursing at https://www.caregiver.org/uploads/2023/01/CCRC-Evaluation-Annual-Report-Executive-Summary-2021-2022.pdf
Specifically, FCA delivers programs at the local, regional and national levels to support family caregivers. As the Bay Area Caregiver Resource Center, part of a network of 11 centers throughout the state of California, FCA provides a range of caregiver education resources and services including: in-depth comprehensive caregiver assessment (in-person, by phone and 2-way video conferencing), care planning specific to the caregiver's need , and caregiver classes on a wide variety of topics including managing dementia care behaviors, stress management, self-care for caregivers, problem solving and decision making skills and more (in person and online), respite care (in-home, adult day care, overnight, legal/financial guidance (fact sheets and vouchers for consultation with an attorney), individual and family counseling, caregiver support groups (in-person and online), information and referral. FCA maintains an ever-growing and often-referenced, peer reviewed library of caregiver fact and tip sheets available online for caregivers to access free of charge at their convenience.
FCA established the National Center on Caregiving (NCC) in 2001, to respond to requests for information from state governments and other public and private organizations nationally seeking consultation on how to address caregiver needs in their state or how to replicate a caregiver resource center model.
In 2016 we built CareNav, a digital caregiver record system and 24-7 service delivery portal to improve caregiver access and scale services to reach and respond to the needs of more caregivers. As of 2019, the 11 CRCs use CareNav, with over 20,000 unique caregiver records, providing the best longitudinal caregiver data set in the nation that documents the caregiver experience, what help they are seeking, and what services make a difference for their care.
How we listen
Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.
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How is your organization using feedback from the people you serve?
To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals, Hosting listening sessions
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Which of the following feedback practices does your organization routinely carry out?
We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We tell the people who gave us feedback how we acted on their feedback
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What challenges does the organization face when collecting feedback?
The people we serve tell us they find data collection burdensome, Many clients receive requests for feedback from multiple organizations, which can be burdensome.
Financials
Financial documents
Download audited financialsRevenue vs. expenses: breakdown
Liquidity in 2023 info
1.57
Months of cash in 2023 info
0.5
Fringe rate in 2023 info
29%
Funding sources info
Assets & liabilities info
Financial data
Family Caregiver Alliance
Balance sheetFiscal Year: Jul 01 - Jun 30
The balance sheet gives a snapshot of the financial health of an organization at a particular point in time. An organization's total assets should generally exceed its total liabilities, or it cannot survive long, but the types of assets and liabilities must also be considered. For instance, an organization's current assets (cash, receivables, securities, etc.) should be sufficient to cover its current liabilities (payables, deferred revenue, current year loan, and note payments). Otherwise, the organization may face solvency problems. On the other hand, an organization whose cash and equivalents greatly exceed its current liabilities might not be putting its money to best use.
Fiscal Year: Jul 01 - Jun 30
This snapshot of Family Caregiver Alliance’s financial trends applies Nonprofit Finance Fund® analysis to data hosted by GuideStar. While it highlights the data that matter most, remember that context is key – numbers only tell part of any story.
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Business model indicators
| Profitability info | 2019 | 2020 | 2021 | 2022 | 2023 |
|---|---|---|---|---|---|
| Unrestricted surplus (deficit) before depreciation | $417,755 | $1,209,481 | $389,694 | $1,111,841 | -$306,498 |
| As % of expenses | 12.6% | 24.5% | 8.4% | 21.7% | -6.3% |
| Unrestricted surplus (deficit) after depreciation | $386,264 | $1,180,476 | $366,323 | $1,096,517 | -$311,039 |
| As % of expenses | 11.5% | 23.8% | 7.9% | 21.3% | -6.4% |
| Revenue composition info | |||||
|---|---|---|---|---|---|
| Total revenue (unrestricted & restricted) | $3,623,915 | $5,879,052 | $4,954,386 | $6,589,023 | $4,162,568 |
| Total revenue, % change over prior year | -2.1% | 62.2% | -15.7% | 33.0% | -36.8% |
| Program services revenue | 2.9% | 0.7% | 2.2% | 2.8% | 4.1% |
| Membership dues | 0.0% | 0.0% | 0.0% | 0.0% | 0.0% |
| Investment income | 0.8% | 0.4% | 0.1% | 0.1% | 2.9% |
| Government grants | 71.3% | 75.8% | 81.7% | 65.7% | 87.1% |
| All other grants and contributions | 24.7% | 23.4% | 16.0% | 31.4% | 5.9% |
| Other revenue | 0.3% | 0.3% | 0.0% | 0.0% | 0.0% |
| Expense composition info | |||||
|---|---|---|---|---|---|
| Total expenses before depreciation | $3,316,462 | $4,940,868 | $4,631,248 | $5,134,159 | $4,842,332 |
| Total expenses, % change over prior year | 19.5% | 49.0% | -6.3% | 10.9% | -5.7% |
| Personnel | 44.6% | 39.1% | 41.3% | 44.1% | 50.1% |
| Professional fees | 38.5% | 45.5% | 45.2% | 42.1% | 31.1% |
| Occupancy | 7.0% | 4.9% | 4.9% | 4.6% | 3.5% |
| Interest | 0.0% | 0.0% | 0.1% | 0.0% | 0.0% |
| Pass-through | 1.8% | 1.2% | 1.3% | 1.2% | 1.2% |
| All other expenses | 8.0% | 9.3% | 7.2% | 8.0% | 14.1% |
| Full cost components (estimated) info | 2019 | 2020 | 2021 | 2022 | 2023 |
|---|---|---|---|---|---|
| Total expenses (after depreciation) | $3,347,953 | $4,969,873 | $4,654,619 | $5,149,483 | $4,846,873 |
| One month of savings | $276,372 | $411,739 | $385,937 | $427,847 | $403,528 |
| Debt principal payment | $0 | $0 | $0 | $309,074 | $0 |
| Fixed asset additions | $0 | $0 | $38,976 | $25,343 | $0 |
| Total full costs (estimated) | $3,624,325 | $5,381,612 | $5,079,532 | $5,911,747 | $5,250,401 |
Capital structure indicators
| Liquidity info | 2019 | 2020 | 2021 | 2022 | 2023 |
|---|---|---|---|---|---|
| Months of cash | 0.9 | 0.5 | 0.7 | 0.4 | 0.5 |
| Months of cash and investments | 4.6 | 3.9 | 5.9 | 7.0 | 7.7 |
| Months of estimated liquid unrestricted net assets | 5.0 | 6.2 | 7.6 | 9.4 | 9.2 |
| Balance sheet composition info | 2019 | 2020 | 2021 | 2022 | 2023 |
|---|---|---|---|---|---|
| Cash | $256,111 | $211,989 | $271,060 | $175,309 | $195,857 |
| Investments | $1,009,197 | $1,385,507 | $2,006,772 | $2,820,916 | $2,925,848 |
| Receivables | $1,309,687 | $2,483,085 | $2,039,061 | $2,424,234 | $1,833,247 |
| Gross land, buildings, equipment (LBE) | $84,805 | $84,805 | $117,505 | $142,848 | $145,966 |
| Accumulated depreciation (as a % of LBE) | 92.9% | 100.0% | 86.7% | 82.1% | 83.4% |
| Liabilities (as a % of assets) | 16.9% | 25.9% | 21.5% | 11.2% | 32.2% |
| Unrestricted net assets | $1,387,568 | $2,568,044 | $2,934,367 | $4,030,884 | $3,719,845 |
| Temporarily restricted net assets | $853,916 | N/A | N/A | N/A | N/A |
| Permanently restricted net assets | $0 | N/A | N/A | N/A | N/A |
| Total restricted net assets | $853,916 | $620,729 | $615,912 | $886,178 | $519,371 |
| Total net assets | $2,241,484 | $3,188,773 | $3,550,279 | $4,917,062 | $4,239,216 |
Key data checks
| Key data checks info | 2019 | 2020 | 2021 | 2022 | 2023 |
|---|---|---|---|---|---|
| Material data errors | No | No | No | No | No |
Operations
The people, governance practices, and partners that make the organization tick.
Documents
Executive Director
Kathleen Kelly
Number of employees
Source: IRS Form 990
Family Caregiver Alliance
Officers, directors, trustees, and key employeesSOURCE: IRS Form 990
Compensation data
Family Caregiver Alliance
Highest paid employeesSOURCE: IRS Form 990
Compensation data
Family Caregiver Alliance
Board of directorsas of 4/7/2025
Board of directors data
Amanda Breeden Warner SECRETARY
Amber Christ MEMBER (EFF 9/22)
Ambika Pajjuri
Deborah Kan MEMBER
Ian Tong VICE PRESIDENT
Karen Sperling
Keely Stevenson
Weal Life
Marda Stothers
Presbytery of San Francisco
Mary Ellen Kullman MEMBER
Sarita Mohanty
The SCAN Foundation
Shruti Kothari
Blue Shield of California
Tiffany Riser MEMBER
Wyatt Ritchie
Cain Brothers
Board leadership practices
GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.
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Board orientation and education
Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? yes -
CEO oversight
Has the board conducted a formal, written assessment of the chief executive within the past year ? Yes -
Ethics and transparency
Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? yes -
Board composition
Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? yes -
Board performance
Has the board conducted a formal, written self-assessment of its performance within the past three years? yes
Organizational demographics
Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.
Leadership
No data
Race & ethnicity
Gender identity
Transgender Identity
Sexual orientation
Disability
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